When her 8-week-old son is diagnosed with an ultra-rare neurogenerative disease, Caroline Sahba navigates guilt, grief, and eventually gratitude as she seeks out medical treatments and finds support within the rare disease community.
When her 8-week-old son is diagnosed with an ultra-rare neurogenerative disease, Caroline Sahba navigates guilt, grief, and eventually gratitude as she seeks out medical treatments and finds support within the rare disease community.