After being told “good luck” was the only plan for her daughter’s rare disease, a mother transforms years of sleepless nights into a foundation, a community, and a path forward for families around the world.
Jennifer Sills is the Founder and President of the CSNK2A1 Foundation, which she started after her daughter was diagnosed with a rare genetic condition with no treatment, no roadmap, and no clear next step. With no background in science, she taught herself how to read research papers and began building the foundation, community, and momentum her family couldn’t find. Today, she works alongside scientists, clinicians, and families around the world to accelerate progress toward treatments.
Jennifer is also a lawyer, though these days she spends more time talking about protein kinases than contracts. She lives in California with her family and is almost always up at night.