After multiple relapses, Carlos Guerrero-Anderson takes a chance on an experimental treatment for his rare cancer.
Read More"Up at Night," by Jennifer Sills
After being told “good luck” was the only plan for her daughter’s rare disease, a mother finds a path forward for her family and others around the world.
Read More"The Bridge That Built Me," by Ivana Badnjarevic
The Old Bridge in Heidelberg became the metaphoric turning point where a mother transformed from engineer to patient advocate, building a supportive network for families affected by rare neurotransmitter diseases.
Read More"From the NICU to the Podium," by Ada Lio
When motherhood took an unexpected turn into the world of rare disease, Ada Lio transformed from a Type A planner into a community leader—building the very hope she once searched for.
Read More"Finding My Community," by Elizabeth Ann
Elizabeth Ann has trouble adjusting to a career at a non-profit, until something clicks about what it means to advocate for rare disease.
Read More"The Power of Finding Your Community," by Tracy Milne
When Tracy Milne's young son is diagnosed with a rare disease, she finds hope in community.
Read More"Can We Fix It?" by Kasha Morris
This is a story about fixing an impossible problem in an unexpected way.
Read More"That 'Spinning Room' Moment," by Jill Kiernan
This is a story about one family's rare disease journey and the birth of a community.
Read More"Navigating a World Not Built for Us," by Avery Roberts
Avery Roberts is breaking down barriers tackling misconceptions surrounding disability and giving a loud voice to the, often-forgotten, rare disease community.
Read More"How My Bad Dating History Led to Me Being a Rare Disease Advocate," by Becky Nieves
Do you know what happens when a Type A fixer turns into a rare disease mom warrior? Then have a listen!
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