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The Story Collider

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"The Advocate I Never Planned to Become," by Necia Sabin

March 30, 2026

Necia shares her journey to finding her voice to help others.

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Tags parenting a child with rare disease, building a rare disease foundation, advocate

"My Sister Callie," by Rocky Tucker

March 25, 2026

Rocky Tucker’s younger sister Callie is the 121st person to be diagnosed with Alstrom syndrome.

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Tags parenting a child with rare disease, advocate

"The Bridge That Built Me," by Ivana Badnjarevic

January 12, 2026

The Old Bridge in Heidelberg became the metaphoric turning point where a mother transformed from engineer to patient advocate, building a supportive network for families affected by rare neurotransmitter diseases.

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Tags parenting a child with rare disease, building a rare disease foundation, community engagement, advocate

"She Is Nesba," by Scotty Sims

January 12, 2026

When Scotty Sims' daughter is born something seems off to her, but everyone around her dismisses her concerns.

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Tags parenting a child with rare disease, advocate, genetic disease, genetic testing

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UPcoming Shows

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New York, NY - Realignment
May 17
May 17, 2026
New York, NY - Realignment
May 17, 2026
May 17, 2026

Thank you to our listeners, storytellers, workshop participants, sponsors, donors, and funders. We couldn't do this without you! 

We are grateful for the support of the New York State Council on the Arts, The NYC Department of Cultural Affairs, Society for Science, and The Richard Lounsbery Foundation, as well as past support from the Rockefeller Brothers Fund, Science Sandbox, The National Association of Science Writers, The Kavli Foundation, Lyda Hill Philanthropies, The Burroughs Wellcome Fund, and The Tiffany & Co. Foundation, which seeks to preserve the world’s most treasured landscapes and seascapes.

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