Necia shares her journey to finding her voice to help others.
Necia Sabin is the Executive Director and Co-Founder of Heterotaxy Connection. Her daughter’s diagnosis set her on an unexpected path of surgeries, uncertainty, and searching for someone who understood. That search became the foundation of Heterotaxy Connection, built so families would never have to navigate this rare condition without support. Necia now leads the organization’s work in education, partnerships, and improving the experience for families and clinicians alike. She is driven by the hope that the next parent hearing the word “heterotaxy” for the first time will have a clearer, kinder path forward.