"The Simple, Powerful Act of Sharing Knowledge," by Ana Pataki

Hello, World!

What began as her family’s journey through our younger son’s rare pediatric cancer diagnosis became Ana’s path into patient advocacy, where she learned how critical informed, confident advocacy is for families facing serious illness.

Ana Pataki is a PhD student in sociology and a patient advocate focused on rare diseases and pediatric cancers. A decade ago, she was a mother learning to navigate her son’s life-threatening diagnosis. Today, as a Faculty Committee member of EUPATI, she supports and mentors new generations of patient experts, promoting informed and effective patient involvement. Ana is living with her family and working from Novi Sad, Serbia.