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"From the NICU to the Podium," by Ada Lio

January 12, 2026

When motherhood took an unexpected turn into the world of rare disease, Ada Lio transformed from a Type A planner into a community leader—building the very hope she once searched for.

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Tags parenting a child with rare disease, found, genetic disease, community engagement, scientific conference

"Piece By Piece," by Kit Donahue

January 21, 2025

After witnessing the disconnect between researchers and families struggling with mental illness, Kit Donohue is determined to bridge the gap between science and the people it aims to help.

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Tags patient-driven research, research network, research agenda/strategy, scientific conference

"How My Bad Dating History Led to Me Being a Rare Disease Advocate," by Becky Nieves

April 16, 2024

Do you know what happens when a Type A fixer turns into a rare disease mom warrior? Then have a listen!

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Tags genetic testing, genetics, genetic disease, parenting a child with rare disease, scientific conference, community engagement

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UPcoming Shows

Featured
New York, NY - Realignment
May 17
May 17, 2026
New York, NY - Realignment
May 17, 2026
May 17, 2026
London, UK - A Matter of Perspective
Jun 6
Jun 6, 2026
London, UK - A Matter of Perspective
Jun 6, 2026
Jun 6, 2026
San Antonio, TX - Science Stories Worth Repeating
Jul 14
Jul 14, 2026
San Antonio, TX - Science Stories Worth Repeating
Jul 14, 2026
Jul 14, 2026

Thank you to our listeners, storytellers, workshop participants, sponsors, donors, and funders. We couldn't do this without you! 

We are grateful for the support of the New York State Council on the Arts, The NYC Department of Cultural Affairs, Society for Science, and The Richard Lounsbery Foundation, as well as past support from the Rockefeller Brothers Fund, Science Sandbox, The National Association of Science Writers, The Kavli Foundation, Lyda Hill Philanthropies, The Burroughs Wellcome Fund, and The Tiffany & Co. Foundation, which seeks to preserve the world’s most treasured landscapes and seascapes.

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