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"Speeding Up the Diagnosis Process," by Zhandong Liu

January 21, 2025

Scientist Zhandong Liu uses AI to speed up the diagnosis process.

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Tags genetics, genetic testing, improving diagnosis, genetic disease, research network, research agenda/strategy

"Figuring Out Who I Am," by Katie Stevens

January 21, 2025

Having become a mother at 18, this is supposed to be the year Katie Stevens figures out who she is — but then she discovers her 12-year-old son is terribly ill.

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Tags parenting a child with rare disease, genetic testing, genetics, research network, patient-driven research

"Piece By Piece," by Kit Donahue

January 21, 2025

After witnessing the disconnect between researchers and families struggling with mental illness, Kit Donohue is determined to bridge the gap between science and the people it aims to help.

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Tags patient-driven research, research network, research agenda/strategy, scientific conference

"A Picture Frame," by Axel Lankenau

January 21, 2025

When Axel Lankenau is told that both of his sons have an ultra-rare, life-limiting neurological disorder, he is forced to confront a future he never imagined.

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Tags parenting a child with rare disease, building a rare disease foundation, research network, patient-driven research

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UPcoming Shows

Featured
New York, NY - Self Discovery
Jul 14
Jul 14, 2025
New York, NY - Self Discovery
Jul 14, 2025
Jul 14, 2025
Los Angeles, CA - Don't Panic
Jul 17
Jul 17, 2025
Los Angeles, CA - Don't Panic
Jul 17, 2025
Jul 17, 2025

Thank you to our listeners, storytellers, workshop participants, sponsors, donors, and funders. We couldn't do this without you! 

We are grateful for the support of the New York State Council on the Arts and The Richard Lounsbery Foundation, as well as past support from the Rockefeller Brothers Fund, Science Sandbox, The National Association of Science Writers, The Kavli Foundation, Lyda Hill Philanthropies, The Burroughs Wellcome Fund, and The Tiffany & Co. Foundation, which seeks to preserve the world’s most treasured landscapes and seascapes.

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