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The Story Collider

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"The Summer When Everything Changed," by Linda Martin

January 21, 2025

In the summer of 2016, Linda Martin received a call from her husband that changed her life forever.

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Tags parenting a child with rare disease, pancreatitis, living with a rare disease, improving diagnosis

"Ben's Story," by Leah Myers

January 21, 2025

In the first few months of her baby’s life, Leah Myers worries that something is off.

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Tags parenting a child with rare disease, living with a rare disease

"The Family Curse," by Allison Peck

January 21, 2025

Allison Peck and her husband are faced with the harsh reality of the genetic disease IBMPFD when their three-year-old outruns him.

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Tags genetic disease, living with a rare disease, patient-driven research, genetic testing, genetics, building a rare disease foundation

"Not Strong At All," by Kim McClellan

January 21, 2025

Kim McClellan reflects on her lifelong battle with recurrent respiratory papillomatosis and learns how to use her voice to fight for change.

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Tags living with a rare disease, drug repurposing, building a rare disease foundation, social media/disease awareness

"Thankful," by Riley Blevins

April 23, 2024

Riley Blevins went to work for Cure HHT in hopes of helping his son. But turns out, he wouldn't be the one doing the saving.

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Tags parenting a child with rare disease, living with a rare disease, genetic disease, improving diagnosis, genetics, genetic testing

"Driving Miss Dorie," by Dorie Shapiro

April 18, 2024

Prepare to be entertained by the thrilling saga of Dorie's fearless teenage driving escapades!

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Tags living with a rare disease, genetic disease

"The Journey Is Just Beginning," by Carmen Camacho

April 18, 2024

Carmen Camacho's story spans decades, but her journey is just beginning.

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Tags genetic disease, living with a rare disease, genetics, genetic testing

"Navigating a World Not Built for Us," by Avery Roberts

April 16, 2024

Avery Roberts is breaking down barriers tackling misconceptions surrounding disability and giving a loud voice to the, often-forgotten, rare disease community.

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Tags living with a rare disease, community engagement, social media/disease awareness, patient-driven research

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UPcoming Shows

Featured
New York, NY - Self Discovery
Jul 14
Jul 14, 2025
New York, NY - Self Discovery
Jul 14, 2025
Jul 14, 2025
Los Angeles, CA - Don't Panic
Jul 17
Jul 17, 2025
Los Angeles, CA - Don't Panic
Jul 17, 2025
Jul 17, 2025

Thank you to our listeners, storytellers, workshop participants, sponsors, donors, and funders. We couldn't do this without you! 

We are grateful for the support of the New York State Council on the Arts and The Richard Lounsbery Foundation, as well as past support from the Rockefeller Brothers Fund, Science Sandbox, The National Association of Science Writers, The Kavli Foundation, Lyda Hill Philanthropies, The Burroughs Wellcome Fund, and The Tiffany & Co. Foundation, which seeks to preserve the world’s most treasured landscapes and seascapes.

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