Kim McClellan reflects on her lifelong battle with recurrent respiratory papillomatosis and learns how to use her voice to fight for change.
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Science evolving is a good thing, but it’s not always the answer you hope for.
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Elizabeth Ann has trouble adjusting to a career at a non-profit, until something clicks about what it means to advocate for rare disease.
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This is a story about fixing an impossible problem in an unexpected way.
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This is a story about one family's rare disease journey and the birth of a community.
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Avery Roberts is breaking down barriers tackling misconceptions surrounding disability and giving a loud voice to the, often-forgotten, rare disease community.
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