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The Story Collider

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"The Journey Is Just Beginning," by Carmen Camacho

April 18, 2024

Carmen Camacho's story spans decades, but her journey is just beginning.

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Tags genetic disease, living with a rare disease, genetics, genetic testing

"Navigating a World Not Built for Us," by Avery Roberts

April 16, 2024

Avery Roberts is breaking down barriers tackling misconceptions surrounding disability and giving a loud voice to the, often-forgotten, rare disease community.

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Tags living with a rare disease, community engagement, social media/disease awareness, patient-driven research

"How My Bad Dating History Led to Me Being a Rare Disease Advocate," by Becky Nieves

April 16, 2024

Do you know what happens when a Type A fixer turns into a rare disease mom warrior? Then have a listen!

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Tags genetic testing, genetics, genetic disease, parenting a child with rare disease, scientific conference, community engagement

"Strong," by Amber Black

April 16, 2024

A mother's journey with self-identity while navigating her two-year-old son's rare genetic epilepsy.

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Tags parenting a child with rare disease, genetic disease
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UPcoming Shows

Featured
New York, NY - Unspoken
Jan 26
Jan 26, 2026
New York, NY - Unspoken
Jan 26, 2026
Jan 26, 2026
New York, NY - Sacrifice
Feb 16
Feb 16, 2026
New York, NY - Sacrifice
Feb 16, 2026
Feb 16, 2026
Los Angeles, CA - Off The Map
Feb 19
Feb 19, 2026
Los Angeles, CA - Off The Map
Feb 19, 2026
Feb 19, 2026
The Story Collider All-Star Slam
Feb 24
Feb 24, 2026
The Story Collider All-Star Slam
Feb 24, 2026
Feb 24, 2026

Thank you to our listeners, storytellers, workshop participants, sponsors, donors, and funders. We couldn't do this without you! 

We are grateful for the support of the New York State Council on the Arts and The Richard Lounsbery Foundation, as well as past support from the Rockefeller Brothers Fund, Science Sandbox, The National Association of Science Writers, The Kavli Foundation, Lyda Hill Philanthropies, The Burroughs Wellcome Fund, and The Tiffany & Co. Foundation, which seeks to preserve the world’s most treasured landscapes and seascapes.

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