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The Story Collider

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"The Journey Is Just Beginning," by Carmen Camacho

April 18, 2024

Carmen Camacho's story spans decades, but her journey is just beginning.

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Tags genetic disease, living with a rare disease, genetics, genetic testing

"Navigating a World Not Built for Us," by Avery Roberts

April 16, 2024

Avery Roberts is breaking down barriers tackling misconceptions surrounding disability and giving a loud voice to the, often-forgotten, rare disease community.

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Tags living with a rare disease, community engagement, social media/disease awareness, patient-driven research

"How My Bad Dating History Led to Me Being a Rare Disease Advocate," by Becky Nieves

April 16, 2024

Do you know what happens when a Type A fixer turns into a rare disease mom warrior? Then have a listen!

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Tags genetic testing, genetics, genetic disease, parenting a child with rare disease, scientific conference, community engagement

"Strong," by Amber Black

April 16, 2024

A mother's journey with self-identity while navigating her two-year-old son's rare genetic epilepsy.

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Tags parenting a child with rare disease, genetic disease
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UPcoming Shows

Featured
Queens, NY - Now or Never
Mar 5
Mar 5, 2026
Queens, NY - Now or Never
Mar 5, 2026
Mar 5, 2026
Story Collider Presents: Science Stories from the STEAM Factory
Mar 10
Mar 10, 2026
Story Collider Presents: Science Stories from the STEAM Factory
Mar 10, 2026
Mar 10, 2026
Atlanta, GA - Atlanta Science Festival
Mar 19
Mar 19, 2026
Atlanta, GA - Atlanta Science Festival
Mar 19, 2026
Mar 19, 2026
New York, NY - Acceptance
Apr 13
Apr 13, 2026
New York, NY - Acceptance
Apr 13, 2026
Apr 13, 2026

Thank you to our listeners, storytellers, workshop participants, sponsors, donors, and funders. We couldn't do this without you! 

We are grateful for the support of the New York State Council on the Arts, The NYC Department of Cultural Affairs, Society for Science, and The Richard Lounsbery Foundation, as well as past support from the Rockefeller Brothers Fund, Science Sandbox, The National Association of Science Writers, The Kavli Foundation, Lyda Hill Philanthropies, The Burroughs Wellcome Fund, and The Tiffany & Co. Foundation, which seeks to preserve the world’s most treasured landscapes and seascapes.

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