When her stepdad is diagnosed with a rare blood cancer, Barbara Goodman realizes her life’s work might be exactly what he needs.
Read More"Speeding Up the Diagnosis Process," by Zhandong Liu
Scientist Zhandong Liu uses AI to speed up the diagnosis process.
Read More"The Summer When Everything Changed," by Linda Martin
In the summer of 2016, Linda Martin received a call from her husband that changed her life forever.
Read More"The Gift," by Gareth Baynam
Three Aboriginal children hold the key for unlocking important medical insights.
Read More"Ben's Story," by Leah Myers
In the first few months of her baby’s life, Leah Myers worries that something is off.
Read More"Figuring Out Who I Am," by Katie Stevens
Having become a mother at 18, this is supposed to be the year Katie Stevens figures out who she is — but then she discovers her 12-year-old son is terribly ill.
Read More"The Family Curse," by Allison Peck
Allison Peck and her husband are faced with the harsh reality of the genetic disease IBMPFD when their three-year-old outruns him.
Read More"Manageable," by Amy Wood
Amy Wood struggles to cope with her son's sudden brain tumor diagnosis, and managing the lifelong effects of his benign craniopharyngioma.
Read More"Not Strong At All," by Kim McClellan
Kim McClellan reflects on her lifelong battle with recurrent respiratory papillomatosis and learns how to use her voice to fight for change.
Read More"Piece By Piece," by Kit Donahue
After witnessing the disconnect between researchers and families struggling with mental illness, Kit Donohue is determined to bridge the gap between science and the people it aims to help.
Read More"Maybe This Is Progress," by Mary Vyas
After Mary Vyas’s son is diagnosed with PSC,, she is determined to be a living liver donor.
Read More"For King Nazir," by Lakeia Nard
Lakeia Nard fights for answers to her son's rare disease.
Read More"The Next Bomb To Drop," by Emily Ventura
Emily Ventura is desperate to find answers about her baby’s mysterious illness.
Read More"A Picture Frame," by Axel Lankenau
When Axel Lankenau is told that both of his sons have an ultra-rare, life-limiting neurological disorder, he is forced to confront a future he never imagined.
Read More"Never Giving Up, One More Time ," by Nikki Stusick
Science evolving is a good thing, but it’s not always the answer you hope for.
Read More"Thankful," by Riley Blevins
Riley Blevins went to work for Cure HHT in hopes of helping his son. But turns out, he wouldn't be the one doing the saving.
Read More"Giving Up," by Heidi Wallis
This is the story of a type-A rare disease mom who tries for years, but can't undo her daughter's brain damage, so she sets out to stop other children from facing the same fate, and learns in the interim that "giving up" is just what you need to do sometimes.
Read More"Finding My Community," by Elizabeth Ann
Elizabeth Ann has trouble adjusting to a career at a non-profit, until something clicks about what it means to advocate for rare disease.
Read More"Rare Resilience," by Ann Geffen
A mother recounts her journey as her 3-year-old daughter battles Kawasaki disease, a rare and potentially life-threatening condition.
Read More"Searching for Answers," by Zoe Wisnoski
Zoe Wisnoski's son has a high fever so she searches for answers that are not always so easily given.
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